We are Jack & Elizabeth McKelvey,

On the 20th October 2014 our beautiful baby girl Lily was born healthy & happy. Lily is our absolute world, she is the most happy bright and beautiful little girl. In December we found out Lily would be becoming a big sister to a baby brother due in June 2021. We were all so blissfully happy making our Christmas just gone the happiest yet. However completely out of nowhere Lily started to be violently sick shortly after Christmas. We had a few doctor visits and it was just put down to a bad case of Gastroenteritis. Lily continued to vomit every morning and we knew something was not right.

On Sunday 10th January we were advised by a private doctor to take Lily to hospital. We took her to Colchester A&E where she was put into Paediatrics. Lots of tests were carried out including a CT scan. Following the results of the CT scan we were told that a mass in Lily’s brain had been found.

On Monday 11th January an MRI scan was then carried out on Lily. The results of this were sent to Addenbrookes Hospital Cambridge where a team of experts would examine the scan. We were told that we would have to travel to Cambridge to speak with Dr Burke.

On Tuesday 12th January we made our way to Addenbrookes hospital Cambridge where we were told that Lily had a condition called DIPG which is a tumour that grows in the stem of the brain. We were told that it is terminal, without radiotherapy Lily would die in 6 months and with radiotherapy Lily would live no longer than 12 months. Our whole entire world came crashing down, the pain of how we are feeling is unexplainable . Our Little girl is only 6 years old.

Lily will start Radiotherapy at Addenbrookes Hospital Cambridge on Wednesday 20th January. Lily will have 13 sessions of this treatment.

Having done lots of research into this rare form of brain cancer found in young children we have discovered that there are other treatments available after Radiotherapy, However these treatments are not available in the UK.

We have found a doctor in New York who provides treatment for DIPG . They are consulting with our Doctor in Cambridge. Lily may be able to travel there for treatment after Radiotherapy.

Our Lily is so precious to us and we will go to the end of the earth to fight for her precious life. Life without Lily is unthinkable we have to fight for her.

Any funds raised and not used will be donated to a DIPG charity.

 

Jack and Elizabeth